Tag: momlife

Posted in autism, parenting

My Fear of Raising Black Autistic Kids Today

Posted on by Mom Boss

Whenever you see the clip on the news of the latest unarmed black person being killed at the hands of a rogue police officer, do you ever find yourself thinking- “My God… what if that was my child?” Because I have… I have thought about this more times than I care to count. This is something that scares the bejeezus out of me because, I not only have two black children, I have 2 Autistic black children. 

“According to the advocacy group Autism Unites, people with autism spectrum disorders are seven times more likely to interact with police over their lifetimes, compared with people without a cognitive disorder.”

So when I imagine if this were to ever happen to my son, I imagine it would go something like this:

My beautiful brown-skinned curly haired sweet boy, maybe 9-10 years down the road (so 16-17yo) walking home one evening from a friend’s house or maybe home from a shift at his first job, when someone calls the police about a “suspicious black male” in their white neighborhood. A police officer arrives,     (I’m going to pause here and say- this is not going to be a jab at police officers for racism. This is merely to point out a lack of knowledge and training in mental health [specifically autism] for first responders and a need for procedure reforms)     and because they are unaware that this tall-for-his-age boy, not only lives in this neighborhood, is also autistic- they do the full bit of turning their lights on, shining a flashlight on my son, and approaching him- all of which will overload his senses, making him confused and overwhelmed. They speak in a loud and firm voice- which he takes to be mean and aggressive (his nature) which makes him paralyzingly scared. They try talking to him, but because he is often uncomfortable in social situations with people he doesn’t know, he doesn’t respond. Which makes the police officer suspicious and agitated. Eli would most likely not look this officer in their eyes and would probably be fidgeting subconsciously with his hands and fingers like he normally does when he is nervous, unable to stand completely still.
  Being distracted and overwhelmed by the lights, a loud affirming stranger barking orders at him, unable to fully communicate or probably comply with some of his orders… How do we think this situation would end? Say we get to the point where an officer tries to put handcuffs on my son and he has an emotional breakdown and isn’t able to process all the different emotions he’s feeling (which currently happens to him almost daily) and begins to “resist” the officer. This is where my son could lose his life. All because a first responder couldn’t read the signs. 

So what are the signs?

A person with autism might:

-Have impaired sense of danger
-Be overwhelmed by police presence
-Fear a person in uniform, or become overly curious and reach for objects (badge, handcuffs) 
-React with fight or flight responses
-Not respond to “stop” or other verbal commands
-Have delayed speech and language skills
-Engage in repetitive behavior (stimming, rocking, hand flapping, spinning)
-Have sensory perception issues

According to Autism Speaks: how should a police officer approach a person with autism?

-Be patient, give them space
-Use simple, concrete sentences
-Be alert to signs of increased frustrations and try to eliminate source
-Avoid quick movements and loud noises
-Do not touch them unless necessary

Yeah that’s cool, but… what if a police officer doesn’t know someone is autistic?

So if a police officer has NO IDEA that the person they are about to approach has Autism and starts exuding any of this behavior…then what? Very few Police Departments in the United States have any mandatory formal special needs training for their officers. Which means the majority of officers would not recognize ANY of this behavior and associate it with Autism Spectrum Disorder. My guess is that it would be assumed to be drug induced behavior. Like in the story of 14 year old Connor in Arizona:

-Connor was approached by a police officer in a park. 
When a family friend returned to the boy after being 
gone for only a matter of minutes, the police officer 
had the 14 year old boy pinned to the ground because 
he thought the boy was on drugs, when the family friend 
ran up and told the officer he had Autism and was 
“stimming” the officer got up and released him. The 
officer left the boy bruised and bleeding, the boy also 
needed surgery on his ankle 6 months later directly due 
to the incident. The officer received no discipline.

Now pause for a second and think- what if an officer stops my son and DOES have personal prejudices against POC (people of color). How likely are they to follow any of the suggested guidelines on how to approach people with mental disabilities/Autism? If someone out there has prejudices against black males- are they going to assume that this teenage black boy that won’t look him in the eyes, won’t respond to his questions, and won’t stand still and stop fidgeting is on the Autism spectrum or is he more than likely going to assume he’s on drugs or simply being disobedient? What would you think? No… no, Not the answer you would say out loud in front of people- what would be the first private thought to come into your head if you saw a black male with that behavior? Because I’d like to survey the country, personally, and see how many people answer “crack head”…

Of course these are all hypotheticals here, as my son is currently only 7 years old; but am I making any of you go:

This may just be hypothetical for me and my children’s future… but it is a reality out there for many mothers like myself who DO have teen-adult black autistic individuals in their family. 

Like in the story of 18 year old Ricardo Hayes.
>>>> Read here <<<<

So…..what am I getting at?

What I’m talking about isn’t necessarily a dig at the cops themselves. I don’t want anyone thinking I am anti-cop here… My grandpa was a state police officer. I’ve had multiple family members, including my husband currently, in the military. I am NOT anti-police, anti-military, anti-government, anti-whatever else (well, I think most of us out there can agree to being anti-BAD COP… I hope anyway). However… the point I am trying to make here is: there is a huge need for multiple types of reform in our country. We could honestly all benefit from everyone taking a step back and reevaluating every inch of our country’s foundation. I could go all day, but for this blog specifically… I think our country’ public safety system needs a complete overhaul. 

I feel very strongly that police officers need more education and training. Again, this is not a dig at the actual officers- this is above them. We need to be providing them with more knowledge, education, and support BEFORE they start.

Hear me out… not every state requires you to get a college degree before becoming a police officer. In most states you can become a police officer with no other education beyond a high school diploma/GED and completing the academy. State police academy’s seem to vary in length between 14 weeks to 6 months long. That’s it.

So you could have any racist Joe Blow off the street with a GED, go and complete a 3-month academy, pass a drug test, and then send him out on the streets with a loaded weapon to happen upon my little dark-skinned autistic boy who is afraid of strangers and doesn’t respond appropriately, by nature, in social interactions? No thank you…

So why is there not more schooling required to become an officer? Why are there no mental health evaluations done on potential officers to make sure they are fit for the job? Why do all departments not have mandatory mental health trainings for officers like New Jersey or Florida? Although- I’d like to point out that Florida only enacted that mandatory rule after police officers shot an autistic man’s behavioral therapist because they thought the autistic man WHO WAS SITTING & PLAYING WITH A TOY TRUCK… had a gun. See video below:

Unless you live under a rock, I’m sure you’ve heard the recent cries from people to “Defund the Police.” When I first heard that I thought (like I’m sure plenty of you out there did too)- Well that’s just dumb, that doesn’t make any sense. It will look like the Purge movies here…. Until I started reading and listening (which more people really need to start doing by the way, but I digress…)

From my understanding-     [so, if I’m interpreting anything wrong here, please feel free to comment on the post and correct me!]      -people aren’t just saying- take away the police and be done with it. They are saying, take away some of the police funding
(think larger cities here, not your Podunk barely-staying-afloat towns filled with people of the same race [*cough* white…] and generally same economic statuses)
and invest that money into the low income neighborhoods. By investing more money into the neighborhoods, the schools, the hospitals, etc you are, in one sense, improving the safety of the entire community without buying the police newest-model cars or bigger guns.

            Another idea I’ve heard from “defund the police” is to dismantle the police department… *as we know it currently*   See video below:

Essentially, We would still have police officers, but they would not be called for every instance. Our public safety departments would be separated into specially trained and educated groups, specifically trained to handle specific situations. Of course this may just be a dreamer’s idea, I have not had time to do the full research on this aspect yet (but you bet your ass that I will be!)

            If you’ve gotten this far in the post, thank you. Whether you agree with anything I’m saying or not… thank you for at least taking the time to hear out someone else’s opinions and someone else’s feelings and fears. This blog wasn’t made in haste in the heat of the moment. I have been researching for this blog for some time now. I have checked facts, I’ve checked DOJ websites and documents. I’ve even attached all of the websites below that I used for this blog. This blog was not written purely from emotions… this blog was written from INFORMATION. 

            All I’m going to leave you with is: no matter what your feelings are towards Black Lives Matter, police brutality, systemic racism, or even your political views (which, racial issues are NOT political… but I find that people make it political?? idk..) just be sure to do your due diligence first. Listen to what people are saying and research the topics from trusted, impartial and unbiased publications. Just because you haven’t witnessed or experienced injustices due to the color of your skin doesn’t mean it doesn’t happen daily and doesn’t mean “this isn’t a color issue” Lastly, Remember- some of you may feel that the current issues in the world don’t affect you… but if you have a family member, friend, or even simply a community member that is a POC – this most certainly DOES affect you. Even if you have none of those…you still have fellow American citizens who need our help. This affects us all. 

Posted in autism, parenting, Uncategorized

…I think my child might have autism.

Posted on by Mom Boss

Are you noticing signs of delays in your child? Is your child nonverbal or behind on their developmental milestones? Are you wondering if maybe your child has Autism? Let’s go over some warning signs of Autism Spectrum Disorder (ASD) and the steps you should take!

*A disclaimer before viewing the warning signs… it is important to remember that autism is a SPECTRUM disorder… no two children on the spectrum are exactly the same. There is no definitive checklist for autism. The warning signs that I am about to give you are merely *common* signs.

Common early warning signs of Autism: 

Physical signs-

  • No speech or delayed speech
  • Repetitive speech or babble
  • Does not point to objects
  • Does not respond to his/her name
  • Avoids eye contact
  • Repetitive physical motions (hand/arm flapping, body rocking, spinning n circles)
  • Over/under sensitivity to sounds, lights, smells, tastes, and touches
  • Little to no social skills
  • Avoids or resists physical contact
  • Lack of safety/danger awareness
  • Lines up toys or objects
  • Plays with toys the same way every time
  • Prefers/focuses only on certain parts of objects (ex. Wheels)
  • Hyperactivity
  • Unusual eating and sleeping habits
  • Causes self-injury
  • Hyperactivity

Emotional/Mental signs

  • Lack of interest in objects or thing
  • Little to no imaginative play
  • Prefers to be alone
  • Difficulty understanding emotions (their own emotions and the emotions of others)
  • Easily upset by minor changes
  • Has obsessive interests
  • Unusual interests and behaviors
  • Extreme anxiety or phobias
  • Impulsive
  • Aggression
  • Meltdowns

*To reiterate, if your child has some attributes that are on this list, it does NOT mean they are definitely on the spectrum. On the flip side, your child may have little to no attributes on this list but could still have other indicators that may lead to an autism diagnosis. This list is merely a jumping off point from commonly seen signs. 

So if you still have concerns about your child, maybe they have a few of these common signs… what’s next? What are the first steps to getting answers? To getting your child help?

Here is my step-by-step list to starting the ASD process. 

1. Schedule an appointment with your child’s pediatrician to discuss concerns.

A. Generally a referral to a developmental pediatrician is needed for an autism diagnosis. Be aware that getting in to see a specialty pediatrician can often take a long time (upwards of six months). 

B. I suggest that while you wait for a medical evaluation to be conducted, you jump to parts 2 or 3 (depending on the age of your child) then return to 1c when you hear back from the office performing the evaluation.

C. The evaluation process can vary based on the office you’re using. (My son was only seen by the developmental pediatrician for about 1-2 hours, my daughter was seen by a developmental pediatrician, speech therapist, occupational therapist, and physical therapist, totaling 4 hours)

D. If the evaluation finds your child on the Autism Spectrum (or with another type of developmental delay) it can open a window for many fully or partially covered services under your insurance. 
-Speech therapy
-Occupational therapy
-Physical Therapy
-Applied Behavior Analysis (ABA) therapy

E. Get a referral from your doctor for the therapy services. You can do these therapies in addition to any Early Intervention or school services your child may start receiving.

2. If your child is between the ages of 0-3:

*Disclaimer: my knowledge of Early Intervention programs is largely based on Michigan’s program. It’s been difficult to find comparative data among all state programs, so take some of these details with a grain of salt and be sure to look up the steps for your specific State‘s Early Intervention Program!

A. Look up your State’s Early Intervention Program. All States and US territories offer early intervention programs, but each State’s program may vary from others. However, ALL Early Intervention Programs in the U.S. are completely free.

B. You can self-refer your child for an evaluation online

C. Someone from the program will reach out to you, send you profile questionnaires for you to fill out about your child, and get your consent for their program to perform an in-home evaluation.

D. Generally the program has a set amount of time from the moment you refer your child until the entire evaluation is completed. (Because every state is different, I’m hesitant to say that this is the case for every State’s programs. Michigan has 45 days from the time of referral to complete the evaluation.)

E. If the evaluation finds a need for services (speech, occupational, physical therapy, etc) State-funded, in-home services can begin. 

F. Services can run year round and your team will update your child’s plan yearly.

If your child is 3 years old or older:

A. Reach out to your School District’s special education department and discuss getting an evaluation for an Individualized Education Program (IEP)

B. Your child can get evaluated by a multi-disciplinary team. This team is made up of licensed professionals employed by the school based on your child’s specific needs (medical, physical limitations, learning delays, etc)

C. If the evaluation finds a need for special education services, the team can put together your child’s limitations, needs and goals into an IEP and school based services can begin. 

D. Beginning School services
-If your child is school-aged already at this time, They will receive services during the school day. The most desirable option is to have the child in general education classes and have them pulled out for short therapy sessions.
-If your child is not school aged yet, but has aged out of early intervention programs (so between ages 3-5) your child can still receive services through the school system, either in the form of a preschool, special education preschool, or a drop in therapy program, depending on what your school offers.

Educate Yourself

A. Do your research
-Look up the above things I just discussed (the closest developmental ped in your area, your state’s early intervention program, and your school districts website)
– Get in touch with your insurance company and find out your coverage information. Do they offer supplemental coverage for autism? What therapy services are covered? Make sure you’re aware of your copays and deductibles.
– Find credible online sources to learn a little bit more about Autism Spectrum Disorder. You can get good sources from your pediatrician, health department, and school district!

B. Find online resources
-I swear just go to Pinterest and type in Autism Activities and you will get a million and more ideas for sensory play, fine and gross motor activities, etc.
-Find parent support groups. It’s just just whining and bitching (I mean.. sometimes it is…) but they are also a great place to share ideas and resources!

Relax.

A. The hardest parts are over. Honestly, trying to navigate where to start and who to reach out to was probably the most overwhelming part for me my first time around.

Honestly, this blog took me forever to write. Not ONLY because I’m quarantined inside my very small house with my two very stir-crazy, needy children who will not let me sit at my computer in peace for more than 5 minutes at a time….. but because I didn’t want to spread false information. Although all of these services are available in every single state, I can’t say for certain that every detail of these programs will be exactly the same. I really tried to do my due diligence here. Perhaps if my children would let me get some more research time in I could actually pull criteria for every single state, but I have a feeling until I can get these kids back in school that’s just not in the cards. So if you’ve stayed with me this far, let me just say once more, PLEASE be sure to look up the programs and services for your specific state!

Happy Autism Awareness Month
Stay Safe and Healthy!

Early Intervention By State List

Multi-Disciplinary Team / IEP : More Information

Common Autism Warning Signs

Posted in family, momlife, parenting

A Parents Quarantine Guide

Posted on by Mom Boss

Hi friends!

How are we all doing during Quarantine? 
Going insane? Kids eat all the snacks already? How many times have you watched Frozen II on Disney+ ? Running out of things to do with your kids? 

If you’re like me and answered yes to all of the above, let’s work it out together. 

|
|
|
|
\/

Dump screen time rules!

Honestly… when the kids are inside the house 24/7 for an undetermined amount of time, it’s unrealistic to slap a weak time limit on something that occupies our kids so well. Sure, we can put together a whole list of daily activities, but we all know that no matter how much you plan for your kids during the day, there’s always going to be a ton of boring downtime. So screw it. When we’ve exhausted all our other ideas… just let them go and enjoy your alone time. Look at it positively…. If your child gets down a Minecraft tutorial Youtube rabbit hole, you have time to watch an entire movie- uninterrupted. 

Does your family have any online streaming services? We made the switch a couple years ago to go from satellite TV to online streaming only. Currently, we have Netflix, Hulu, Amazon Prime, and Disney+. Basically the options for my kids are endless; which means, more distractions for them and more alone time for me (hopefully).

Forget the toilet paper… Get those chips!

No matter what age child you may be stuck at home with during this time (or even an adult manchild for that matter) snacks are a MUST. When kids are in school we pack only a snack and lunch for them, but for some reason when kids are home they need to eat every 30 minutes. Load up on everyone’s go-to snacks. Now I’m not saying be that asshole that goes and clears the shelves at Walmart or Meijer of all the bags of Lay’s potato chips… but feel free to get yourself a few bags. Both my kids are on big fruit kicks right now, which I love, but obviously fruit doesn’t have a long shelf life, so make sure to stock up on your kids favorite non-perishables because trust me, they’re going to eat them. 

Pinterest is your new best friend

Running out of ideas to keep the kids occupied? Prepare to get lost in a Pinterest Black Hole. Now, I’m not saying turn into a “Pinterest Mom” Well, by all means… do your thing. All I’m saying is, there is no better place out there to get inspiration for literally ANYTHING other than Pinterest. I set aside a good 30 minutes the other day and pinned a bunch of indoor activities for children and wrote down what supplies I would need. Now that I have all/most of my supplies I am going to start testing out all the ideas. Since we don’t know just how long this quarantine is going to last, I’m going to do one Pinterest activity a day. That way I don’t use up all my ideas in 1-2 days. 

Time consuming activities

Nothing fancy or creative here. Just good old fashion time-consuming fun. Line up some activities that will occupy your kids for longer than 30 minutes Yesterday I wanted to clean the house while my daughter was asleep so I told Eli to go in his room and make Batman town out of his Imaginext playsets. He took it one step further and said he will do an Imaginext town and a Lego town and have them Battle. He was in there for almost 2 hours. Win for me. I got 3 rooms cleaned and my car vacuumed in peace. 

Try these:

-100+ piece puzzles

– Lego Challenges: assign them certain designs to create, it will take longer than just tinkering

– Make a book: I have premade empty booklets (pictured below) or you can always DIY a book with paper and a stapler! If your child can’t write the words themselves yet have them draw the pictures and you can write the words for them!

– Outside Time: Spring is coming! Depending where you’re reading from, the weather may be starting to perk up. Sun is starting to shine a little more, the air is getting a little warmer, the snow is starting to melt, so kick those kids outside! Plan an outdoor nature walk, scavenger hunt, ANYTHING. Get them some fresh air and get yourself some space.

School is in session

Oh…that’s right…we’re supposed to be homeschooling our own kids during this quarantine. I almost forgot. The good news is, there are a lot of online options to help you out. 

– ABC Mouse : New sign ups enjoy one month free. It seems after that it is $10/mo, cancel anytime. We have used this in the past and my son really did enjoy it. A lot of the activities are very play based but also have great educational bases

–ABCYA : My son actually told me about this site. It is the one they use in computer class at his school. This website can be used for free, or you can upgrade to the PRO version for $10/mo
–Teachers pay Teachers : If your child does better with pencil and paper learning, check this out. I saw some teachers recommend this to someone on facebook the other day so I checked it out. There is an endless amount of printable activities you can do with your kids. Certain items do require payment but there are also a lot of FREE options available too!
-Reading time: Whether your child is an independent reader, non-reader, or an inbetweener, try to set aside some reading time. When school was in session Eli had to read a new book for class every night (short easy stories) that we always did right before bed. To be honest we did slack off on this. After I was done spring cleaning and organizing his room I stocked his room with books so we can start back up with our nightly story times!

No matter what your plan is for this quarantine, you’re sure to go insane regardless. As much as we love our kids, my god… being trapped in the house with them day in day out is exhausting. Just remember to give yourself mental and physical breaks from your kids and your responsibilities. It’s fine if you’re not actively parenting or teaching every minute of the day. It’s fine if your living room looks like a bomb went off. The day isn’t ruined if the morning dishes are still in the sink. There are 24 hours in a day and we have no idea how long this quarantine could last, so as the flight attendants say- secure your own mask before assisting those around you. Your mental and physical health matters too!

Posted in momlife, motherhood, parenting

Common Misconceptions of a SAHM

Posted on by Mom Boss
  1. I’m sure you could work if you really wanted to….
  2. The military must be good money if most wives don’t work.
  3. You don’t do anything all day.
  4. I wish I had your life.
  5. Your life is so easy

These are some things I have heard since I became a stay at home home mom 7 years ago. None of them bother me. In fact, I’m sure I probably say similar things about moms with other family dynamics. Since being a stay at home mom is something I know a lot about… let’s examine some of these frequently said claims, as they pertain to ME.

1. Could I work if I really wanted to?

-Well, yes and no. My life the past 7 years has always been….unstable (and no, I’m not talking about my mental health lol.) Being a military family, we have moved more times than I can even count. I generally don’t stay in a place long enough to hold a decent job. Before Eli started school, he did 20 hours of ABA therapy a week and an hour of speech and occupational therapy a week, then moved on to a 3-hour a day preschool. To hold a full time, or even a part time job for that matter, I would need to hire a full time nanny to be home for therapies and be able to get my son to and from school.

Now that my son is in school full time, I was left at home with my daughter. Could I have worked then? Yes. And I did apply to jobs, unfortunately I didn’t get them. Currently, Eli is in school full time and Camille just started special ed preschool that is 3 hours T-F. So here I am again with more time constraints. I bring my son to school at 8, head back to school to drop my daughter off at 1130, then go back to pick both kids up at 230. Are there any jobs hiring Tuesday- Thursday between the hours of 12-2:30pm??

Furthermore, if I did get a job at any point in the last few years, without a Bachelor’s Degree, any entry level job I could would probably pay pretty closely to what my cost for childcare would be. At that point, is it worth it?

2. So how good IS military pay?

-To put this as vaguely, yet informatively, as possible… no, military pay doesn’t live up to the hype. Listen… if you were to look at the numbers before healthcare, rent, and taxes are taken out, sure, it would look pretty damn good. Then again, that’s true for everyone’s paychecks! I think two of the biggest misconceptions of military pay are: (1) we get free healthcare and rent (2) Military members get paid very well. Both of these are false.

Healthcare, for the member and their family, is taken out before the money reaches the member. Same is said for rent. If you are living in military housing, the rent is taken out of your paycheck before it reaches the service member. I’m assuming this is where the idea comes from that these things are all free? Healthcare coverage depends what plan you’re on and your location. Sometimes everything can be covered 100% with no copays and no deductibles. Currently for my location and the plan that I am on, I pay both.

In all, the military pays decently- not horrible, not fantastic. My husband makes enough to support his family, but the sad truth is… there are a lot more stable and safer careers out there that make far more money. The military definitely doesn’t pay enough for the work and the sacrifices made for the job. Of course, the higher you go, the higher the pay. likewise, if you enter the military with a college degree, you start out with a much higher salary than lower enlisted, and rightfully so.

So if military pay isn’t all that, why are so many wives stay at home moms (or just stay at home wives)? Well… it’s hard. Realistically, service members generally move every four years and can deploy during that four year time too. Having a lot of short lived jobs on your resume doesn’t look the best, nor does having long gaps either. A lot of military towns are saturated with people, making job prospects minimal and hard to come by. A lot of wives probably choose not to work for convenience, and some probably do it because they don’t have any other options!

3. What do I do all day?

-Depends on the day. Back when we lived in San Diego, a typical day for me would be 4 hours of ABA therapy, pick up and drop off at a 3 hour special ed preschool, cooking, cleaning, evening speech and occupational therapy appointments, laundry, homework, blogging, and bedtimes. Lately, an average day for me has been: bring my son to school at 8, come home and work out, bring my daughter to school at 11:30, clean the house and run errands, pick both kids up at 2:30,  snacks, blog, computer work, dinner time, homework time, bedtime, then reclean the house. Is anything I do physically demanding? No. Do I have it easier than most people? Yes. Am I at the complete mercy of my children 24 hours a day and am slowly losing my mind? Also, yes. 

4. I wish I had YOUR life.

-Well, I wish I had YOUR life. The grass is always greener folks… If your hair is short, you have the urge to cut it. When you cut your hair short, you impatiently wait for it to grow back out. There are obviously a lot of appealing parts of being a stay at home mom: seeing your kids more, being there for all of the firsts, yadda yadda. I think a big part of being a stay at home mom that often gets overlooked is that- when being a SAHM becomes a part of your identity, different parts of your identity get forced out. I’ve given up a career, my independence, my freedom. I am at the complete mercy of my children and their lives, so much so that I struggle just to find my purpose and passion in life beyond my kids. I often feel like just a shell of a person, with nothing in my life at all outside of raising children. Don’t get me wrong, I’d make the same choice again and again if given the opportunity. Just know, when you choose to stay home or work, there will always be a little part of you that yearns for the other choice.

5. My life is anything BUT easy

-Am I chopping lumber every day or performing lifesaving CPR on a patient? No, but my life is pretty mentally and emotionally challenging. My routines are repetitive, my freedom is nonexistent, my social life is limited. I am surrounded by kids nearly 24 hours a day. I struggle to finish a single task without being interrupted by a child. Trying to find time to work on my computer, clean an entire room, or even take a shower is a struggle. So sure, being a stay at home mom seems like a pretty easy gig, and it is in a lot of ways… but it is a lot more draining than people give it credit for. 

This blog isn’t to try and say how hard working I am or make my life seem harder than it is. I’m not arrogant enough to think that I work harder than a working mom, another SAHM, or anyone at all for that matter.

A lot of people tend to have this perception that stay at home moms just sit on the couch all day watching real housewives all day eating snacks…don’t get me wrong… WE DO THAT.. we just don’t get to do that ALL THE TIME. There’s a lot more to this life than people think. There is a lot more mental exhaustion and loneliness than people think.

My favorite times of the day as a stay at home mom is the first thing in the morning when it’s dark and quiet and I enjoy my first cup of coffee in uninterrupted silence and at night after my kids have gone to bed when I enjoy a bedtime snack and do some yoga. Those two times are the only times during my day that are all mine. I still may not be able to do anything that I want to do, but at least I get that peace and quiet!

Posted in family, momlife, motherhood, parenting

What Screens are teaching my kids

Posted on by Mom Boss

I’ve never admitted to being a perfect parent. In fact, I am far from it. My kids eat like crap (processed foods, chips, Mcdonalds, really whatever the hell I can get them to eat..), we don’t follow daily schedules, I forget to brush teeth some nights, and I do not have a screen time limit. I wish I were a more structured mom, but honestly…. Whatever. 

Has anyone heard the parenting tip: “Don’t let the TV be the babysitter?” Let’s all laugh together.. Don’t get me wrong, I do believe that your kids shouldn’t be staring at a tv screen 18 hours a day. But isn’t parenting just easier when you can make dinner, take a shower, or clean the house uninterrupted because your kids are content and distracted? 

I will say that my children are learning things from their screens that I couldn’t teach them. Not that I haven’t tried to teach them certain things.. but often times with my kids I’m just the teacher from Charlie Brown 

Both of my kids have always had intense focus when it came to TV. Camille for instance, has learned so much from her favorite movies and shows. She had no desire to sit down and read books together. She did not take to using picture cards or sign language. One thing that she is doing, however, is watching shows and repeating words and phrases that she hears. I have heard her say SO MANY words, none of which are consistent or used for actual communication. She has memorized the lines and the songs from these movies and knows most of them by heart.

Just because she’s not actively trying to communicate with me, there isn’t a doubt in my mind that she doesn’t have an age appropriate vocabulary by now….. it’s just stuck in her head. Her favorite show, Word Party, just added a new season with a brand new character. A baby turtle who speaks mandarin. Camille is starting to say the words they say in Mandarin! 

As for my son, Eli, he has always been a lover of TV. We brought him to his first movie at a movie theater when he was a little over a year old and it was true love ever since. 

Now that he’s a little older, he’s let his love stretch across all different kinds of electronics. He watches shows and movies, watches Youtube videos, plays on his ipad, Nintendo switch, and WiiU.  At a glance it looks like he’s just wasting his time with his face in a screen… and maybe he is, but honestly he is learning a lot more than he is wasting. Let me explain.

What Minecraft is teaching my son:

  • Geology: One day he told me he was having a hard time finding more obsidian. I’m like….what? I had to google what he was talking about. He knows all the different kinds of rocks, stones, gems, and soils.
  • Agriculture: He’s learning how to start and maintain gardens, what foods grow in the ground and above of the ground, what certain animals eat, etc. 
  • Survival skills: when he plays this game in “Survival Mode” he has to keep track of his health and hunger levels. He has to keep his character out of danger, learn how to ward off things that can hurt him, he creates fire, makes shelter. He’s a regular boy scout!
  • Architecture: When Eli finishes a house, it honestly blows my mind. He can make the most elaborately designed houses. He makes secret passageways, hidden rooms, basements, attics, spare bedrooms. I’ve tinkered with the game in the past and I can tell you… this stuff is NOT easy.
  • Creativity: Watching him play this game is so mesmerizing. He gets so lost in this alternate universe. He creates scenarios and storylines; it’s truly great to see him in love with something so much. During his free time at school he creates Minecraft story books with hand drawn artwork and a story to match.

His love for Minecraft is insane. It’s an obsession, really. For his birthday this year, in lieu of a party I bought tickets for us to go to Minefaire in Indianapolis. He gets to meet all his favorite Youtubers, play the game on big screens and via virtual reality, watch stage shows, hang out with other Minecraft-obsessed kids his age. 

What Super Mario Maker (Nintendo Switch) is teaching my son:

  • Creativity: If you’re unfamiliar with this game, you are creating your own levels from all versions of Mario Bros. he’s taught himself (I was no help) how to use all the features and how to make a new functioning and achievable level. Each level he makes is completely different from other ones he has done before. 
  • Problem solving: Once you make your level you can then play the level. If he goes to play a level that he had just made and realizes that it is not achievable, he goes back and adjusts the problem areas.
  • Hand-eye coordination: Playing games like this is really helping him in this area. Holding the remote in his hands while concentrating on the screen is actually a great thing (in small doses, of course!)

How can Youtube possibly be helping my child?:

*Just a preface- this is based entirely on my son’s personal watch history on his kids Youtube account. I am fully aware of how much pointless, and often, inappropriate crap is on Youtube, even kids Youtube!*

            – Minecraft: He knows all the top Minecraft Youtubers. He pays attention so well to these videos and is actually learning from them. He remembers different things these people make in the game and tries them on his own later. I would love to add that this is improving his listening skills when it comes to listening to his mother, alas it just appears to be for the TV.

            – Life Hacks: The new craze Eli has been into on Youtube is Lifehacks. One day he came barreling out of his room asking me for solo cups and an empty paper towel roll. He watched a video on how to make a DIY speaker for a phone or Ipad and he wanted to make a speaker so he could “hear his games louder”

Listen… I know sitting in front of a screen all day is no way for a child to live. Kids need to be kids. I want my kids to be with friends, run around outside, play sports, make mud soup after a rainstorm. But let me be honest, if I’m busy, we have no plans, the weather is crappy out, or I’m just honest-to-God too tired to parent… my kids will be watching tv, playing games, or whatever. The whole “don’t let the TV be the babysitter” thing is not my style at all. As long as you are monitoring WHAT your kids are watching and HOW LONG they are watching screens for, it can actually be a great learning resource for them. 

NEVER let people guilt you for your parenting choices. If your children are loved, clothed, and fed you are doing just fine. 

Posted in autism, family, parenting

The Cost of Autism

Posted on by Mom Boss

In January we finally got to do Camille’s autism evaluation.

Now, I could go on and on about the inner workings of the four hour appointment, but that is not going to be the meat of this blog, so let’s just go with an overview.

We started the eval process in about July 2019. We had to go to their regular pediatrician for an appt and to get a referral. We went on the waitlist for the developmental clinic and finally got our appointment in the middle of January 2020. The day comes, and we get to the pediatric specialty clinic and we spent about an hour with each specialty. One hour with a developmental pediatrician, one hour with speech therapy, and a shared hour with both an occupational therapist AND a physical therapist at the same time. The time with all three specialists were pretty much all the same: mostly asking me questions and having me fill out scantron-style forms, watching Camille, and trying to get her to do certain tasks. I would say about 75% of each session was spent mostly just talking with me.

The evaluation is not even finished. We still have to get Camille evaluated by a behavioral therapist, who’s waitlist is six months long. WHY we were not put on their waitlist back when we got on the waitlist for the developmental clinic is BEYOND ME. Now, by the time we get in with the behavioral therapist, Camille’s autism evaluation will have taken one year to complete. Although I could write a whole blog about that and my annoyance with it, this isn’t the topic of the blog either.

This week, about 6ish weeks after Camille’s appointment, we got a statement from the evaluation appointment, along with the bill for the remaining balance. YA’LL….. The total for this *partial* autism evaluation was $1,846.48. 

Let me break the bill down for you:
Clinic (developmental pediatrician): $773.65 <—for ONE HOUR
Occupational Therapy evaluation: $305.61
Physical Therapy evaluation: $342.28
Speech Pathology evaluation: $424.94

Total: $1,846.48
Tricare Insurance covered 98% of the total costs
My remaining balance: $33

…Thank GOD for decent insurance! Who could afford that otherwise? I don’t know much about Autism coverage with insurances (outside of my own experience), but I did read once that a lot of states now are requiring major insurance companies to now cover some autism services, as it is becoming much more common (or should I say, more diagnosed/recognized). 

We have been very blessed with our Tricare coverage when it comes to autism services. When my son was two years old and diagnosed with autism spectrum disorder, we became eligible for a supplemental coverage within Tricare called the ECHO program. This program covers additional medical supplies, therapy tools, and specialty therapies that are not available with the general Tricare plans: you must have a medical diagnosis of some type to qualify for this program.

After seeing the cost of this evaluation (especially being in a rural location in Michigan vs an Urban city like San Diego) it got me thinking…what is the average cost of Autism in the U.S.? Are other people struggling like me? What if people don’t have good insurance like my family does?

*Disclaimer, this information came from about an hour of web searches, so I cannot confirm the validity of this data. If you have knowledge of more accurate data PLEASE let me know!*

The total cost of Autism Spectrum Disorder in the United States is $126 billion. The average cost for providing care to one person with ASD throughout their lifetime is $2.3 million (compared to $1.4 million for a healthy average functioning person). So what is this cost for? Obviously a bunch of different things that can vary for each individual person… that was a boring answer, so here are some of the main factors:

  • Regular doctor appointments
  • Specialty / developmental doctor appointments
  • Speech therapy, occupational therapy, physical therapy
  • Applied Behavior Analysis therapy
  • Medication
  • Childcare (some children with more difficulties can require specially trained childcare)
  • Parent’s loss off income for taking time off for therapies, frequent appointments, IEP meetings, etc

It’s safe to say that life in general is just so much more expensive these days. Medical costs for EVERYONE are insane. We all know that pharmaceutical companies make so much money off their horribly overpriced medications, but don’t let that overshadow all the other overpriced medical treatments in the healthcare field. 

When we were in San Diego and my son started Applied Behavior Analysis therapy (ABA), we were blessed to never have to pay a cent for the service. I did however receive the monthly statements showing me the hours, costs, and confirmation of payment. All I can say is… HOT DAMN. It was around $5,000 a month for ABA therapy in San Diego. (Because we are in Michigan at the moment, I do not have the physical records with me to give you an exact cost of this therapy, but that amount of money is not easily forgotten.)

Eli had two separate therapists (rotated days) that came M-F 8am-12pm and a case manager that came maybe about once a month. One of his daily therapists told me that they didn’t need any certain degree for their job and only made around $12-$15 an hour (in southern California!) Meanwhile, the case manager that came once a month for an hour would drive up in a nice BMW… So why the insane costs??? What is all this money going to? The actual therapists who get screamed at, hit, kicked, and are the ones actually doing the work aren’t getting the money they deserve, so who is getting it? The supervisors who have never met my child?

I think it’s worth mentioning that more often than not, families with a child with some type of disability usually have one of the parents leaving the workforce to become a full time caregiver to the family member, thus leaving the entire family to rely on one income. This, if you’ve followed my blog or know me personally, is the case for my family. I have been a stay at home mom for pretty much 7 years. Between in-home speech therapy, in-home ABA therapy, 3 hour special education preschool days, in-office therapy sessions, I would either need to have a costly full time nanny that I trust to transport my kids around all day or we need to take the loss of an income. What is a solution for this?

 This blog isn’t going to end with my grand solution to this ridiculous high medical costs dilemma. Honestly, I don’t really have any solid ideas at all. Could the government step up and create a solution? Doubtful seeing as how far in debt we are already… What we need is someone or some powerful agency/group and get a control on overpriced healthcare costs. Insurance companies should cover more specialty services. There should be more free state and federal resources for families with disabilities. Until a solution comes to light, all we can do is spread awareness and bring more light to the struggles that SO MANY families are dealing with on a daily basis.

https://www.autismspeaks.org/press-release/new-research-finds-annual-cost-autism-has-more-tripled-126-billion-us-and-reached

Posted in depression, momlife, motherhood, parenting, weight loss

Winter Break is Over

Posted on by Mom Boss

I haven’t blogged in a while, I haven’t been working my Usborne Books & More business, and I haven’t been posting much on social media in general. So what have I been doing? I’ve been trying to get my life together.

I’ve been quite vocal about my struggles with my mental and physical health. I really needed to take a step back from everything I was doing so I could focus on changing my life. I have been focusing on changing my lifestyle and building long lasting routines. To do so, I felt that I needed to cut out some of the extra things in my life so I can dedicate my time to my workouts, meal prepping, and being a better parent. 

I cut out some of my extra “to-dos” so my main focus can be completing my morning workout, getting in my protein smoothie and meal prepping, and creating solid routines for myself and my kids. As I mentioned in a past blog that I am taking Phentermine to help with my weight loss. The key to really making the medication work is using the time you’re on it to create a new lifestyle. This is what sets you apart from yoyo dieting. You can try all the fad diets and see great results, but once you stop the plan or have a few extra cheat days, the weight comes back on. What I am trying to achieve is changing my entire lifestyle to ensure long lasting results. 

I have cut out soda, I very rarely eat sweets, I have very little carbs, have upped my protein and healthy fat intake, and having meal replacement protein shakes. My exercises are all in-home. I follow a work out Youtube channel, The Body Project. They are between 20-45 min cardio workouts ranging from beginner to advanced. I rotate which workouts I do so my body doesn’t get too comfortable. Every night before bed I do between 15-20 minutes of stretching and yoga. Since gaining weight I have had a lot of knee and back problems and I can’t move as well as I used to. The stretching and yoga at night has helped SO MUCH! My back feels amazing, my knee hardly ever bothers me, and I am increasing my flexibility greatly!

-20 lbs

and still cruising!

So now that I’m getting back on track, what’s the next move? Throughout my hiatus I still have been working with the State of Michigan and my local health department as a Parent Representative for Home Health programs. I am helping the state and my community while also learning a lot of great information for myself. I plan on taking this experience and the information I’m learning and spreading awareness of so many great state-funded programs!

I will be going back to my Usborne Books & More sales. I am currently working on a better business model. I have never really been an outspoken person and I HATE being that pushy “buy my stuff” girl. But I, and this is no bullshit, honestly LOVE these books and my kids love these books. Unlike fake weight loss products, overpriced t-shirts, or cheap jewelry, I truly believe that children’s books is always a good investment. Keeping kids interested and engaged while learning is one of the best things parents and families can do for our kids. 

I also plan on keeping a better record of my weight loss and bringing you all along on the journey! I am working on a consistent blogging schedule and really committing myself to something that I love doing so much. 

I appreciate all the love and support that my readers, friends, and family have given me. Despite all the stress and low moments that may happen in my life, I am truly blessed. My life is worth working hard for! 

Posted in family, momlife, motherhood

Not-That-Hacky, Mom Hacks

Posted on by Mom Boss

This was the longest Christmas Break of my life. My son missed the last two days of school before break for high fever. He ended up laid up in bed for 5 days straight with a constant headache and fever. At night he was hallucinating to the point where I was almost convinced he was convinced and I swear I almost kicked him out of this house. This mama does not play with angry spirits. No thank you. He cleaned up just in time for Christmas, however, immediately after baby #2 got sick. She was laid up in bed for 5 days with no solid food during that time. She was admitted into the hospital for IV and tests (which came back pos for influenza B).

Alas… a week into January, my son is back in school, and my daughter is feeling better and back to normal. Time for mama to get back to her pre-crapchristmas routine. I am back on the phentermine, working out, and drinking smoothies. The house is cleaned, de-christmased, and sanitized. So let’s get back to work. Let’s talk mom-hacks. I’m sure we’ve all seen the cute no talking, hand demonstration life-hack videos on social media. Spoiler alert, these are not as good as those videos.

My mom hacks may not be a fit for everyone, after all I’m working with a non-verbal autistic 2 year old over here. Honestly, who knows. Just scroll and find out!


|
|
|
|
V


undefined
1. Toilet “lock” If you know me personally then you may know that I am broke and stingy. I hate spending money on things. My daughter had so much fun with her water table last summer, even though all she did was dunk her barbies in the water for 6 hours straight. Now that it’s winter guess where she dunks her barbies now….. For a while I had intentions of ordering a toilet lock so keep her barbies dry and sanitary. But because of who I am as a person, I just never ordered it. So when its time for me to get in the shower and she won’t allow me the luxury of a closed door, I grabbed a fresh roll of painters tape from the laundry room and threw a strip on a side of the toilet lid. Voila! Toilet lock. It’s also easier than a toilet lock for my 6 year old. Don’t need to show that guy how to unlock a piece of tape!


undefined
2. Easy store Legos- My son has moved on from the nice and big Lego Duplos to the annoyingly small regular Legos and boy did we get a lot for Christmas. I’m too cheap to buy him a Lego table so finding an open hard service to work on was difficult. Not to mention, every single night when I come in to announce bed time the thing I always hear is “MOM IM BUILDING SOMETHING I CANT CLEAN IT UP” BAM- easy solution. I gave him my beloved bed tray. It gives him a hard flat work area, and when its time for bed, the pieces he wants to keep intact or the pieces that are works in progress stay on the bed tray, and the rest of the loose pieces go back into their storage bins. When we get back to business the next day he pulls out his tray and picks up right where he left off.


undefined
3. This one isn’t exactly a DIY hack, but it is something that I highly recommend for our babies that struggle with language. If you’re a Netflix subscriber, I highly recommend the show “Word Party”. The main characters are baby animals, they speak in correct English and also some relatable baby talk since they are learning new words. Much like how Mickey Mouse and other characters ask children to answer questions, this show asks very early age appropriate questions. While watching this show, my non-verbal 2 year old had repeated words, answered questions, sang songs, and danced. All of which she does NOT do outside of watching this show. It honestly blows my mind. Today she sang Happy Birthday from memory of the b-day episode of Word Party, but still can’t call me mama. This show is some kind of magic for my daughter!



undefined undefined undefined

4. Easy-Grab Bubbles- Ok I’m not gonna lie here…. I stole this one….but it’s genius. Fine motor activities can be challenging; not only for delayed children, but all kids in general. Plus whoever thought that putting a 2” too short stick inside a skinny bottle filled with soap was just asking for trouble. I saw a mom online open the bubbles for her kids, grab the wand, put a chip clip on the end, then put it back in the bottle for her kids. The stick stays inside the bottle to reach the soap, but the chip clip keeps it from going all the way back in the tube. Seriously. Genius.



undefined undefined undefined

5. Subliminal toy selections- Now that Christmas is over…how much crap did y’all get? This year for my daughter I only picked out learning toys. You can’t feel guilty if the toys are teaching her something, right? She needs work on her fine motor skills, so I got a lot of toys to help her harness those abilities. Of course we still told people barbies too because hers are disgusting from being dunked in the water table and toilets every day. Plus a girl needs friends, ya know? Learning toys aren’t just Vtech toys, they can honestly be anything.  Examples: 

Toy Story 4 race track– During speech therapy we were working on actions and reactions (saying ready set go then then a reaction of tickling her) so I got the racetrack to give the ready, set, go idea to a new reaction. 
Chomp & count Dino– Equipped with light and sound buttons, a spinner on the top, and a pull string, this toy is great! The best part is it has a piggy bank style mouth where you feed the dino colored discs.
The Learn With Me Color Fun Fish Bowl. Cute, small, piggybank style fish tank. You insert the plastic fish into the slot at the top and once they’re pushed down into the bowl, it tells you what color the fish was! Perfect for fine motor and color identification. 




6. Car storage- Ever go somewhere and your toddler (who you don’t pack a diaper bag for anymore) shits through their pants? Maybe you think giving your kid strawberry donuts in the car is a good idea but when you get to your destination their entire shirt looks like puke. I keep a zip up tote bag in my back seat full of extra clothes, diapers, wipes. There are side pockets that I fill with my sons water bottles, an empty sippy cup, and extra snacks for both kids. After I use something I fill it up so it’s ready for the next disaster. Id like to say that this helps keep my car more clean and organized, but alas it still looks like a cheez-it bomb went off back there. 

When I had the idea for this blog I swear I had a lot more hacks than 6. haha. That’s it for today, they may not be much but hopefully I helped someone out there!

Posted in autism, family, momlife, motherhood, parenting

Parent Advocate

Posted on by Mom Boss

When we become parents, our roles as individuals shift. We no longer solely focus on ourselves; instead most of our efforts go towards our children. We feed them, change them, teach them, support them, love them. You are the one who shapes your child’s life the most; yet we cannot be with our children 24 hours a day. Do our parental duties end at our front door? What more can we do for them outside of our own homes? The main portion of our parental duties is 1 on 1, but what if we could push it farther than that? How can we reach our maximum level of parent? Well, we can move from a support role to an advocate role. 

Have you ever thought to yourself, “I wish they did it like this..” or “Why don’t they do this?” If there is something out there that you think could not only benefit your own child more, but others as well, what’s holding you back from trying to make it happen? Our parenting duties are not confined to our houses. 

There are so many ways that we, as parents, can advocate for our children. Now I cannot attest to each individual state and their own unique opportunities, but I can tell you about what I am learning within Michigan. 

I was recently contacted to be a parent representative for the Michigan Home Visiting Network (HVN). This program supports all state funded home visiting programs, and has a growing coalition to help families across Michigan. HVN brings together hospitals, clinics, tribal health systems, health departments, mental health agencies, early childhood educators, home visitors, and most importantly, parents together to improve outcomes for all mothers and babies in Michigan. Our main objective is to team up and put our different ideas and experiences together to increase the involvement and satisfaction of these programs. 

I attended a training with other parents and state workers from all over the state of Michigan to learn about this program and what our roles are going to be. This is not only a new thing for me, this is an entirely new program to the state of Michigan also! 

One of the main focuses on this training was instilling the notion that we are not “just parents”, but rather that we are parent leaders. We were all there because we wanted to take the initiative to make things better for our children, our families, and our communities. We discussed our individual strengths and characteristics that made us leaders as well as our personal experiences of being an influential parent. Now listen, I’m never going to say that I am a great inspirational parent. In fact, I usually ride the mediocrity line when it comes to parenting. However, the training we went to made me realize that you don’t need to be the best to be able to help others. Given the right tools and resources, we are all able to invoke real change.

One of our exercises was to make a Pi symbol on our paper and write ways that we are parent leaders across the top, write some of our personal characteristics that help us be great parent leaders on the left, and things we could improve on to be better parent leaders on the right side. There is no set of characteristics or past experiences that can make someone a great parent advocate. If you have a child in your life that you care about and you want better for them…that is all you need. Not only was this a great exercise pertaining to the HVN program and our actual training but this was also a great personal exercise. What makes ME GREAT??

Take some time out of your day and look into what you can do for your family. What changes would you like to see? There are opportunities out there, you just have to summon up the drive to find them!  I will get some resources together to help people find advocating opportunities that would work for them, whether its with the health department, school system, or even your child’s daycare! Let me see what we can find and make our communities better for as many people as we can!

If you would like any information about the Michigan Home Visiting Network or their parent representative programs please do not hesitate to reach out to my team advisor- Jamie Rushford- jrushford@lmasdhd.org

Posted in autism, parenting, speech therapy

Unintentional Learning Tools

Posted on by Mom Boss

We watch a lot of tv for a family with no cable. We’re too broke to pay ridiculous monthly payments with Direct Tv. The first 12 months are great but when your incentive period is over BAM! Your bill goes from $75/ mo to $200/mo How? Why? More importantly..for what? I watch HGTV, ABC, and E! My kids watch Disney Junior and Nickelodeon. And you want me to pay how much for 5 channels? Hard Pass.

In the age of Wifi and Smart Tvs we’ve moved on to a trifecta of internet streaming: Netflix, Hulu, and Amazon Prime. There are always new things added each month and Hulu posts tv episodes the day after they premier on tv. (Disclaimer: this is not an ad for any of these services, I do not have nearly the amount of viewers to make that happen..) Anyway, most of the time we end up watching the same shows over and over and over and over and over again. But nobody complains because all of us parents know that children are creatures of habits. They LIKE to watch the same thing over again so it really works out, except when they take off one of your kid’s favorite movies (R.I.P. Trolls on Netflix) The magical thing about this (and the reason for this blog) is my daughter Camille watches the same shows over and over again..she is learning to talk.

I am talking ALL DAY LONG to my daughter. You want a DRINK? You want MORE? MAMA. HELP. EAT. UP. DOWN. PLAY. BALL. BED. —Nothing. Then we turn on Finding Nemo and this little girl has the audacity to yell out BRUCE during the sharks little AA meeting scene. I popped my head out from around the corner like…..wut.

After that, I started watching her watching shows. Then I started recording. She knows so many lines to her shows. She repeats the lines at the exact time at they’re said, she has the correct pitches, correct sound, knows what lines are coming next. Sure, she doesn’t actually say the correct words, but it’s amazing nonetheless. She even started singing the songs. SHE SINGS SONGS! 

There is no better learning tool than face to face interaction. However, let’s be honest.. if your plan A doesn’t work, what do you do? Move on to plan B. This doesn’t mean I’m throwing out all my other tactics. I’m fusing them together. Something I’m doing (which let’s be honest I’ve always done) is using lines from Disney movies in real life to see if she will still get the connection. I downloaded all the songs from her favorite movies onto my phone and play them in the car to see if she will sing along. I am making this house a round-the-clock Disney movie. If Disney is what gets this girl talking then damnit, just call me Rapunzel.  

We’ve tried sign language, pecs picture cards, withholding things until she makes an effort to communicate. Everything we have tried so far hasn’t really had long lasting results. Then with no prompts, she recites and sings Disney movies and it’s honestly beautiful. Tonight as I crack open a Sunday night White Claw, I toast to you, Walt Disney.

“Word Party” on Netflix
Rapunzel- I see the Light
Word Party
Let it Go- Frozen