Posted in family, Uncategorized

The Chair of Shame

A lot of time during Eli’s therapies I have a hard time drawing the line between butting in and staying out of the way. My view is, let the therapists do their job; they’re the educated ones, they know the processes, they know what works and what doesn’t work. However, there are times that, as a mother, I need to say, “Give the kid a damn break!”

Eli was in very intense ABA therapy for a while, (4 hours a day, 5 days a week) so it was kind of hard for me to completely stay out of the process. He also did better when I wasn’t in the room; he listened to the therapists a lot better and didn’t look to me to bail him out. Even through the hours and hours of screams and tantrums I was still close enough to look in and see that it was ok, and every so often I would say “ok, that’s enough” and let Eli take a break. Now, his ABA hours have lessened and so did the demand. ABA is known for being a more intense type of therapy; but at the same time there is a lot of fun and games with it too. Even though he cries a lot during ABA, he has a lot of fun too.

When we go to occupational therapy I am in the room with Eli and his therapist, and though I stay out of the sessions as much as I can, I am there to observe and learn some techniques that work for my son. OT is mostly play based and works great for Eli, no complaints.

Our problem lately has been with speech therapy. The sessions are only 30 minutes, twice a week, each with a different therapist. Eli goes back with the therapists alone and my husband or I are waiting in the lobby. Although waiting in the lobby doesn’t completely keep us out of the loop because we can hear Eli screaming from down the hall. My husband usually takes Eli one night and I take him the other. On the nights my husband brings him, Eli cries and screams the whole session. He mentioned one week that the therapist was going to try keeping Eli in a highchair (pictured above) during the session to keep him focused. I remember not being happy about this at all, but again, the therapists know what they’re doing. After 2-3 weeks of Eli screaming the whole sessions (and not screaming once during the sessions that I take him too) I decided to take Eli this particular night to see what was going on. I didn’t want to seem pushy so I told her how ABA had lightened the stress load because Eli wasn’t responding to forceful “work” he responds almost 100% better during play-based learning. She agreed to try it and invited me back to the room, which is where I first saw the highchair mentioned before and I just could not believe my baby was strapped in that thing for 30 minutes being badgered to name flashcard words. I wouldn’t want to do it either. So she tried just asking him the questions while sitting on the floor and he didn’t response. I told her sometimes other therapists will ask him questions while he is occupied with a toy/game/activity. She did that, and what do you know…he said three words right in a row for her. The rest of the session went smoothly, and hopefully the rest of the sessions will too.

I still stand by my theory that the therapists know what they’re doing and I should, for the most part, leave them to it. But there are times as a mother that you know your child better than they ever will. Parents can give input too. Don’t be too shy to step in and be an advocate for your child.

Posted in family, Uncategorized

School days

Eli is over one week into his first semester of preschool and he loves it (Thank God!). I was very worried about him being ok going somewhere without me. In the past when he went to daycare he would either be happy to go by himself or he would cry and wail when I would turn to leave; it was very hit or miss. This time around he hasn’t cried once, well, except the first day when we came to pick him up (he didn’t want to leave!). I guess when they’re ready, they’re ready!

I do have a lot of concerns about this preschool so far. The whole thing just seemed very unorganized to me. Keep in mind, this is my first child and first time dealing with schools/preschool. I was, and am still, very unsure of how everything works. After meeting with the speech therapist at the school and being told they would like to enroll him in the integrated developmental preschool while we wait for a new IEP, I was just kind of forgotten. Weeks went by without hearing from anyone. I called the school district and was told I needed to come in and register him (who was going to tell me that? I had no idea.) After he was all registered, again I heard from no one. I had to, yet again, reach out to the school and told them I don’t even know the times and days of my son’s class. Do they potty train? Do I bring diapers? Does he get a lunch or snack? I finally got in to meet with someone and got to ask all my questions. I just found it odd, am I the only parent who has asked these questions?? There was no open house or orientation before school began. How are his teachers supposed to know that he signs? That he’s not potty trained? One parent came to pick up their son on the first day and the teacher asked her why she didn’t pack a lunch and the lady told her she didn’t know they served lunch! Class is only 9:30a-12p. Of course all of that information and my questions were all answered in a parent letter in the children’s backpack. How does that help us prepare for the first day of class though?? I have never even seen his classrooms; we meet the teachers out front of the school and they walk the kids back to the classroom. The whole thing is just bizarre.

But staying in the positive, Eli loves going to school so far. His teacher and aids are very friendly! One of the classroom aids told me he made a friend and they played together on the playground. They said he is the best eater in the class and he does very good with his signs. He has come so far in the last for months with all of his therapies and things can only get better after five days a week of socialization with other children and adults. Here’s to a great school year everyone!

Posted in Uncategorized

Living my life for you

One thing that has been a pretty hard pill to swallow for me is that my life is not my own anymore. When you have kids your life becomes your kids; but at the same time most people work and raise children at the same time. That is not the case for me.

In the begging after having Eli I was a stay at home mom, mostly because my husband is active duty military and we moved A LOT in the last 3 years. It was very hard for me to find a job, but I did. In the past three years I had several jobs. I really enjoy being a stay at home mom as much as I do being a working mother; but I think what I liked about my life before is I always had the option to be either. I do not have that option anymore, at this point I am unable to work. My life is being completely consumed with Eli’s therapies (I am not complaining, I want these things for Eli and they are necessary for his development and I would do this same thing for my next child and any amount of children we end up having.) What I am simply saying is that the life I am living is not my own, I am living my life for Eli. Is that a bad thing? I don’t think so; this is what motherhood should be. Mother’s should be sacrificing their own lives for their children. Not having the option to go back to work does make me feel a little boxed in though. Before when I would find work I would put Eli in daycare, now I don’t have that option. Eli is in in-home therapy mon-fri 8am-12pm, speech therapy Tuesday night and Wednesday night and occupational therapy Wednesday afternoon. How would I be able to put my child in daycare with that type of schedule? How would I be able to take college courses (that were not online) with that type of schedule? How do families with two working parents (or a working single parent) get their children the help that they need???

Having the in-home therapy during the mornings does give me some leeway with appointments and errands and actually has been helpful to have during those things. The mornings are when I can schedule all my doctor’s appointments and get shopping done because I have an extra set of hands to help me. But at the same time I am not going to make the therapists go to kohl’s with me to try on shorts, those type of errands get pushed to the back burner whenever I find time after my husband is home.

As you can imagine living off one income is hard for a family of three, especially one living in southern California. I am continuously looking of ways to make money for our family from online transcription, to night shifts, weekend shifts, to even making this blog (although making money off a blog takes a lot of time, a lot a lot of time).

Despite all of the struggles I have to go through, Eli struggles more. That is why, even if I sometimes feel taken over, I will continue to make these sacrifices for him.

Posted in Uncategorized

Getting Mommy Alone Time

Stay at home moms definitely don’t get enough credit. Whether your child has a disability or not, a toddler is a toddler; and toddlers are crazy. Staying home all day with a crazy, hyper, emotional, screaming, crying, yelling child is enough to make anyone hit the wine bottle at the end of the night. Whether you are a single parent or doing it with someone else, parenting is still a full time job. Being a stay at home parent is a non-stop unpaid job with no paid time off.

I often get jealous of other parents, and even my husband, who work. They go out everyday, get to see new people, make work friends, have a life. My life is a 3-year-old, therapists, playgrounds, and tantrums. (Don’t get me wrong, I wouldn’t trade being a stay at home mom, it was the right choice for our family and I will never regret that. Its just, the grass is always greener on the other side kind of thing). When my husband comes home from work I run for the hills for alone time. The days that he comes home from work too exhausted to do anything are the worst because that means no alone time for mommy (until bedtime). Even when my husband is home I, apparently, am the only one who can get more water or change the show on Netflix. Yes, Eli, your dad can do things too, not just your mommy.

What is my solution? Wine. Wine is always the solution. I usually end my night with a glass or two and all the day’s cries, meltdowns, cooking, cleaning, and annoyance of other people’s children melt away with my Pinot Grigio. If you’re not into wine, or alcohol at all for that matter, I have made a list of other sneaky ways to get alone time.

  1. Putting away clean laundry. Did you slave all day washing, drying, and folding clean clothes? Don’t put them away until your significant other comes home. That way you can spend 15 minutes putting away clothes and an extra 45 minutes in the closet on the floor (so no one will find you) watching Netflix.
  2. Find any excuse to go to the store. It’s 7pm but you’re certain you need chicken broth for that crockpot dinner for tomorrow; better run to the store. Take the long way, put in one of your old mixed cds and have an impromptu dance party with the music turned up, because after all, there’s no kids in your car.
  3. When you don’t have a family dinner one night due to everyone’s busy schedule, whip something together for everyone else (very important so no one is waiting on you) and tell you’re significant other you’re going to run and pick yourself up a sub. Drive to Subway, get your sub to go, and eat it in your car while watching Netflix on your phone. I got through a whole episode of Grey’s Anatomy while eating a quiet meal alone. IT. WAS. AWESOME. I showed back up like 40 minutes later and told him there was a long line.

I’m sure someone out there will say, but I don’t have a significant other, it’s just me. Don’t worry, I got you. My husband has a deployment coming up and I have thought of ways to get me through it.

  1. Set the kids up with all their favorite distractions. Sure, kids shouldn’t watch too much tv but is that going to stop me from putting on Zootopia, opening the ipad to his favorite game, and turning on the wii U? No. Once he picks his poison I slowly reverse out of the living room and sprint to my bedroom. I can almost guarantee myself a good 20, sometimes even 30, minutes of non-interrupted alone time.
  2. Make one part of the house look desirable to play in and hide somewhere else. Maybe take out all of your playdoh and put it up on the dining room table, throw in some cookie cutters, maybe even play Disney music in the background. When your child walks in and starts playing, hide as far away from that room as possible.
  3. Take advantage of nap times. Do I mean get all your housework done? Hell no. I mean be a bum, lounge around, watch that episode of Real Housewives you’ve been trying to watch in peace for a week. This is a perfect alone time. To be really proactive, take a morning trip to the park so they wear their tiny ass out and take and even longer nap, because after all, that’s a longer alone time for you.

I love my kid, I swear.