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Another long break

Another long break for me. We packed up our house and moved across the country to the blistering cold and snow. We spent Christmas with my family and Eli and I are saying goodbye to his dad in two days as he sets off for a military adventure. During his time away we will be staying in Michigan. It’s nice to be home with family but it is SO MUCH WORK to transfer all of Eli’s therapies over. He is going to have a long gap before he will start any type of therapy and preschool. I was worried that he would regress in this time but so far that is the complete opposite.

Since I last posted Eli has jumped up to at least 200 words. He spells his name in sign language and loves to spell it for anyone who asks him. He started writing letters independently (some, not all yet). After 3 years of trying to get him into books he finally loves them. He has to get at least three stories before bed time, once those three are read he will ask for “three more story?” and god forbid if you tell him no he will cry and tell you his “heart is broken.”

This was the first holiday that Eli actually understood. Until now he didn’t see holidays, birthdays, or parties as any different type of occasion. This year he understood that Christmas was coming up, what Christmas was, and he actually opened presents. Before he never had any interest in opening past birthday or Christmas presents. However, this year he tore through them all.

When we come back to Michigan Eli has a lot more friends. His best friend is his cousin McKenzie. When they saw each other for the first time they couldn’t be more excited. They hadn’t skipped a beat and played together like they were never apart. We have a lot of opportunity for playdates here so I’m not that worried about his social skills regressing.

One we jump through all the hoops and get his new therapies set up we will fall back into a full schedule. Until then, however, we will be enjoying our lazy life. I, for one, am enjoying the break. Its nice to not always be on the move. I don’t even have to get out of pajamas most days. For now, this is the life.

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Finding Time for Me

I took a bit of a holiday hiatus with my blog. Our family has been very busy lately and I wanted to enjoy what little alone time I had by doing absolutely nothing. Eli took a small vacation from school and therapies as well, but I will point out that the break did not affect his progress at all. He is talking more than ever now. He is saying probably between 100-150 words. He tries to repeat everything everyone says and can read some numbers and letters on his own. Getting Eli to this point has been anything but easy; it has been a lot of hours of school and therapies and constant modeling outside of therapy. In the midst of all this I somehow found the time to complete a certification course online for medical billing and coding.

I made a blog in the past about living my life for Eli. Since we started speech therapy at 18 months my life has been completely focused on Eli; I have never made time to do something just for me. I don’t necessarily regret doing that, I think that when you become a parent your life should be focused on raising that child and giving them everything they need, and for Eli that was therapy, structure, learning sign language, etc. The mistake that I made was thinking that because Eli needed so much of my time, I didn’t have time to do anything for myself. Yes, I had very little time to myself, but it is definitely doable.

So I took the plunge and started an online program for medical billing and coding. Trying to split my time between schoolwork, taking care of the house and laundry, taking Eli to all of his therapies, going back and forth to preschool, and cooking and cleaning up dinner was very difficult. Eli still came first, there’s no way around that; after that, whenever I could fit in schoolwork, I did. I mostly did my work when Eli was at school, taking naps, and after everyone else went to sleep. From August into December all of my free time was going into my school work (and blog). Now that I finished my classes I took my couple week hiatus and I’m ready to spend time back on my blog. It was very challenging to try and get this school finished and there were many times I wanted to just stop and throw in the towel, but I’m very glad I keep pushing through. With our upcoming move I’m sure I won’t be finding a job in this field anytime soon but just knowing what I have and can accomplish is enough for me right now. It’s not easy trying to find your own life when you’re a stay at home parent, single parent, or honesty- any type of parent at all. But speaking from experience, it’s possible and it is very much worth it.

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Learning introductions

This weeks task for Eli has been the phrase, “Hi, I’m Eli”. I’ve noticed time and time again that with his lacking social skills, he is not very good at approaching others. Most kids his age don’t really care who a kid is or if he’s “weird”, they see a kid and want to play with them. A child will go up to Eli and say “Hi” and Eli just stands there awkwardly and says nothing; they’ll ask his name or some other question, and again, he stands there saying nothing. Eventually the kid will either walk away or they will just initiate a game with Eli and he will follow suite and play with them. I really want Eli to progress in the social skills department before we hit kindergarten.

He has come a long way in such a short time and it is amazing. When my husband or I walk into the room he is in, we are greeted with “Hi mommy” or “Hi daddy”. He greets his therapists when they come to the door. He very seldom says goodbye to anyone. He is very good at communicating with those of us who spend a lot of time with him; when it comes to new people he gets very nervous, shy, and quiet. I want him to feel confident enough to speak to a new person, especially when they initiate first. Thus began us learning “Hi, I’m Eli.” All of which are words that he can say individually. One of Eli’s weakest areas in his speech is vocal planning. He knows what he wants to say in his head, but when he speaks it comes out jumbled or babbled. He has to plan the words out carefully in his head before he can speak them (until he gets enough practice, then it becomes more natural). When asked to say the phrase word by word he nails it, when asked to say it all together is where he loses it.

I explained to him that when you meet someone new you say “Hi, I’m Eli” he laughs and tries it, but fumbles. There’s too many I’s in there and it comes out sounding quite silly.  Despite sounding silly, he tries it again and again. But really, this is how he learns to speak now. I will quiz him all day long, mostly casually when we’re playing games or watching tv so he doesn’t realize we’re learning. What I’m noticing now is that he WANTS to talk. He wants to learn new words and phrases. He loves being able to communicate with everyone  he knows. Meeting new people is hard, even for adults, let alone starting a conversation with them. I know that it will come with time, but for now I could hear him tell me “Hi, I’m Eli” all day long.

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Early Warning Signs

I’ve had several people ask me how I started to realize that Eli was a little bit different. Being that he was my first child I didn’t have a lot of knowledge of how and when children were supposed to reach certain milestones. All children are different and some warning signs don’t present themselves in all children. I’m going to start with what I saw in my own child.

Just before Eli turned one he was saying “mama” “dada” and “up”. Once we hit his first birthday he stopped talking all together and went back to baby babble only. We found it a bit odd and started to watch him a bit closer. He never really imitated us (speaking or even motions, like patty cake). I had trouble (and still do) getting him to sit down to read a book with me and he had trouble looking at those who were speaking to him; almost as if he didn’t even hear them.

When he neared 18 months we sought out speech therapy for him. It was then we realized that there were many signs that we didn’t even notice yet. Eli would line up all of his toys; they had to be in a certain order and could not be moved. He preferred playing by himself as well. When I would sit down to play race cars with him, he would get up and walk away. When Eli would get hurt or upset he would run away crying but never turned to me for comfort. He would run away to be alone and didn’t want to be bothered until he calmed himself down. Then there were the tantrums. They never really lasted long but they did happen quite frequently throughout the day. He wasn’t diagnosed with autism until we moved out to California but we did qualify for services in Michigan and made a set of goals to work on with Eli.

As Eli got older, some of these traits disappeared, some stayed, and some new ones came in. As he aged we realized Eli has a lot of trouble registering social cues and verbal tone. We could be angry and be reprimanding him and the acts as though we are playing pretend and its funny. When a child doesn’t like what Eli is doing and asks him to stop, Eli, again, thinks they are playing and continues the behavior until the child either gets angry or leaves. He doesn’t notice emotions, except his own. I would be watching a movie and start crying and Eli wouldn’t even notice. As I just said, he didn’t register when we were angry or annoyed either.

I’m sure there may be other signs that aren’t popping into my head as I type this but for now it is a good start. As I said in the beginning all children are different, the warning signs I saw in my child may not appear in other kids and vice versa. Below I’m going to attach some links that give better insight to autism warning signs than I may be able to give.

https://autism-center.ucsd.edu/TREATING-EARLY-AUTISM/Pages/signs.aspx

https://www.autismspeaks.org/what-autism/learn-signs

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Getting There on Your Own Time

Childhood is not a competition. As parents we shouldn’t compare our children with other kids their age; of course that’s easier said than done. It’s very difficult to not compare kids when you notice all the other kids are doing something that your child isn’t. I was so proud of Eli when he was walking with a walker at 9 months. I was very happy when he quickly and easily got off the bottle at 12 months. Then he stopped talking after his first birthday, I started comparing and I’ve pretty much been comparing since.

I wasn’t just comparing his speech, though that was the main thing. I started looking at what else Eli was behind in compared to other kids I knew. This girl can sing the alphabet song, that boy just named 10 different colors, she just wrote her own name. Then I look at my son who couldn’t do any of those things. It’s not like I needed my son to be like everyone else, I didn’t need him to know these things the same time as everyone else. What I needed was for Eli to be ready for school. My biggest concern for him was that he wouldn’t catch up in time. I wanted him to have a normal childhood as much as he could despite his delays/difficulties.

It wasn’t until recently that I started to give up on comparing Eli with other kids. In the past 6 months he went from being behind on speech, fine motor skills, letters and numbers, color, etc to being able to say over 25 words conversationally (can repeat upwards of 50 different words), signs close to 30 words, knows 10 colors, can count to 5, learned about half the alphabet, and knows close to 20 animals and most of the sounds they make. It was after this big boom of his that I realized, it doesn’t matter if Eli reaches his milestones after most other kids do, what matters is that he is reaching the milestones. Some kids diagnosed with autism never speak and my son just skyrocketed his speech in only 6 months of therapy, that is something to be so proud of. I don’t care what the other kids are doing anymore, I just care that my son just wrote letters on his chalk board all by himself. Seeing the proud smile on his face afterwards is a great feeling.

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Hiding Mommy

Whether you’re a working parent or a stay-at-home parent, finding alone time is next to impossible when you have kids. After you get the laundry done, dinner made and cleaned up, dishwasher loaded, house picked up- all you want to do is eat your damn candy bar without a kid trying to take it from you. Over the past three years I have been perfecting the art of ghosting out on my kid. Now don’t get me wrong, I love my son and love spending time with him. HOWEVER, every mother knows it’s hard to get a moment to yourself some days without hearing the dreaded “Mom. Mom. Mama. Mommy! MOMMY!” and knowing that when you finally go see what they need, you realize they only screamed your name incessantly so you can watch them jump up and down on the couch cushion they pulled onto the floor. Or when they beg you to come into the room to ask you for a glass of water…when theirs is three feet away on the TV stand. This is where the ghosting out technique comes into play. I’ve described five techniques that I’ve tried out. I’m sure the possibilities to this game are endless.

 

  1. Pretend Pooper

You know how seemingly all husbands take 20-minute-long “bathroom visits” while women are in and out in 45 seconds? Aren’t we living in a time of women demanding and receiving equal rights? You get in that bathroom and get the 20 minutes you deserve girl! Who cares if dinner still needs to be cleaned up? Who cares that your kids just destroyed the living room? Who cares if you even have to go to the bathroom at all? Whether you do or not, get a book, open up Facebook, or just put in your headphones and lock that door and enjoy your break.

 

  1. Uncharted Territory

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Are there any places in your home that your children aren’t allowed to go? I put stop signs on all of the doors in our house that lead outside. Eli acknowledges them and knows that he can only open if we are present with him or he asks permission. Use this to your advantage. Find one of these forbidden areas that would work for your quiet time (maybe an area blocked off with a baby gate). For me, it’s the garage. It is right underneath the living room so I can still hear everything that goes on upstairs, but unless I’m spotted going down there, Eli would have no Idea I’m there.

 

  1. Behind closed doors

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For this technique any inconspicuous closet will do (as long as you’re not spotted going in, remember, the most important rule of ghosting is to move without being seen) One you are situated in the closet, close the door and remain as quiet as you can. You can hear your child but he can’t hear you. You have just enough time to finish a snack, or read an article on your phone before your child started ripping open random doors to find you.

 

  1. Beneath the Sheets

This may not always be an option. The only time I can really get this one to work is when Eli is preoccupied downstairs either with a movie or playing with his dad. A lot of times after I get dinner cleaned up and the boys are playing video games in the living room, I drift upstairs and lay in bed and watch some Netflix on my phone. I can get up to a good 20 minutes sometimes before I’m spotted. It’s not only your children who can bust you; you’re wide open for a spousal bust as well. In fact, most of the time when I get busted with this technique, it’s by my husband. When questioned about what you’re doing ALWAYS answer “I came up to put away laundry but I got a cramp in my leg and I fell down and I’ve been waiting for it to go away.” Don’t believe me? Prove it. I’m gonna go start Eli’s bath now…

 

  1. Hidden in Plain Sight

Once your child get’s sick of your hiding antics, they’re going to get better at finding you. This is a good time to switch up your hiding spots. A clever idea is to hide where they’d least expect you. This one has a lot of room for error, but no risk no reward right? While your child is off tearing your bedroom apart or banging on the bathroom door looking for you, you will be hiding in their territory. My son has a loft bed so a good place for me is in the play area underneath his bed. If hidden far enough back he would have no idea I was in there (unless of course he goes under there to play while I’m hiding; which, be warned, is a good possibility). Also, instead of hiding in your closet, you could switch it up and hide in your child’s closet. What are the odds they’d open their own closet looking for you?

Know that this was all in good fun. I really don’t spend my entire day hiding from my child and responsibilities. At the end of the day, my house is clean, my family is fed, and my son is happy. I live a very dull life revolving around my son’s schedule and housework, creating a game for myself makes life a little more fun. Well, that and wine.

(Photo Credit: My husband)

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Newfound friendships

Eli has never had a lot of opportunities for playdates. A lot of my friends have children, but being military we are always relocating. Many of our military friends have no had children yet; so Eli very seldom had the opportunity for friends. Because of his delays, his social skills were subpar and I was worried how he would interact with other kids in school. Since starting school, however, Eli has made a few good friends. When I volunteered for his class I watched Eli go up and initiate play with some of the other kids and it made me so happy. One of my biggest fears after his diagnosis was that he wouldn’t make friends; and it looks like that may not be the case. At least while he is in developmental classes.

Since the first day of school his teachers told me how Eli had a best friend. I was beyond happy for him. Not just because he made a friend, but he made a friend that is just like him. Recently Eli has started to become friends with a girl in his class. They point and wave to each other before and after school and he gets sad when they both get in their cars and leave each other. One day her mother was a couple minutes late for pick-up and Eli demanded to sit and wait with her. I swear my heart swelled over double it’s size. When her mother finally came to pick her up, she ran to her mom and Eli cried because she left. On the way home I asked If she was his girlfriend and he told me yes. Jokingly, I asked if he loved her and he told me yes. Obviously he doesn’t know what I’m even talking about but it was the most adorable thing.

I know Eli will probably have his share of troubles when he starts elementary school, but I cannot express enough how happy I am that he is in this developmental preschool. I feel like it’s everything he needed at this point. He is surrounded by other children just like him. At this point he doesn’t receive any judgment or teasing for his delay and he is making quite a few friends. He is also expanding his vocabulary by the day. We have also nailed down our routines since starting school, every day is different but the schedule is consistent and it’s working well for Eli. Nothing is better for a child diagnosed with Autism than a structured schedule.

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Giving Independence to a NV Child

It was very hard sending Eli off to school. He had been in daycare once before when my husband and I were both working; but that was only for a few months. Now that he will be in school vs daycare there are going to be more demands, which worried me. Nonetheless Eli loves going to school and does great! I had the pleasure of volunteering for his class the other day and to watch him independently following directions and participating in group and solo activities was amazing. He has come so far! But just because I gave him an inch doesn’t necessarily mean I’m going to give him a mile.

Aside from the fact that he is so young, I have a very hard time giving him more independence. When we are at the playground I am always two steps behind him; I can’t be one of those moms who sits at a picnic table reading and not paying attention. I am always worried about him getting hurt, being bullied, or him being a bully. Because he is (for the most part) nonverbal he wouldn’t be able to tell me how he got hurt, or if someone was mean, or if he threw something at someone else. He can tell me generally what happened (that he’s upset and at what or who), but cannot tell me details. So I want to be there so I can see everything that happens; if I’m not I may never know what is going on with him.

Eli really wants to ride the bus to school. He see’s other kids getting on and off the busses before and after school and has asked me multiple times to go on them. When I say no, we have to go to the car, he gets very upset and cries the whole way to our car. I never rode the bus as a kid, I always walked to school, but who doesn’t like riding a bus with all your friends? I would love for Eli to experience that and feel more grown up doing this on his own, but I’m not ready and neither is my husband. I just can’t stop thinking about “what ifs”. What if a kid is mean to him and the bus driver doesn’t see? What if he is physically hurt? Who will tell me? Because Eli can’t speak for himself, I will never know if something like this happens. I saw a story on facebook the other day. A five-year-old girl was riding the bus from school to an afterschool program; the bus was mixed with young and old students. The girl was having a tiff with another young girl when a grown boy in high school said “if you don’t hit her then I will” and slapped this five-year-old girl in the face so hard it left a red mark. Thank God the bus had security cameras that caught the whole thing. If that were Eli in the situation I would never known anything like that had happened because he wouldn’t be able to tell me what happened and who did it. He also wouldn’t be able to stand up or defend himself. I never want him to  be in a position that leaves him so vulnerable to attacks. Children these days are horrible and cruel, the thought of someone being able to be hateful to Eli and him not being able to defend himself makes me sick.

The same could be said for Eli’s classroom; things like that can happen anywhere. Although I will say, after volunteering in his class, 4 adults to 7 kids leaves a lot less room for things like that to happen vs a lot of kids to one bus driver. As Eli grows he needs to receive more independence, but because of his delays he’s going to have to get them a little slower than some of the other kids. For the time being, I will continue to be a hovering mother and I have no shame in my hover game!

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Child discipline vs abuse

* Disclaimer *- Post includes disturbing photos and strong personal opinions. All readers have the right to agree or disagree. I would just like to share my thoughts on this subject-

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I saw this post floating around on Facebook today multiple times and it makes my stomach churn every time. A woman was shopping and saw a man dragging his daughter around by the hair while she cried and asked him to stop. The woman confronted him and he told her to mind her own business and he was free to discipline as he felt necessary. The woman called the police who showed up almost immediately and told the woman that unless there were any signs on bodily harm they could not do anything. Are we really supposed to believe that because this poor girl doesn’t show any physical signs of abuse that nothing bad is happening to her? Is seeing a girl being pulled by the hair and crying and begging him to stop not abuse?!? Is our system failing us? Is this the standard for parenting now?

I know that we are present in the “time of sensitivity”. Everyone seems to get offended at everything these days and pretty much no one can take a stand or action without being torn to shreds. I, however, do not think this is the case here. Yes, I believe children should be disciplined. I tell my child no, I raise my voice, I send him to his room, he gets swats on the butt, none of which actually cause him any real pain. When I was younger we got spanked and swatted with wooden spoons, did anyone call the cops? No. Parent’s DO have the right to discipline their children how they see fit…to a certain extent. Publicly abusing and ridiculing your child in front of a hundred or so people in a grocery store is different. I have raised my voice at my son in front of people, I have even swatted his butt in front of people. We’re people watching me? I’m sure. Did anyone judge me? Probably. Did anyone feel the need to call the police? NO. because it was discipline not abuse.

The difficult part in all of this is- where do we draw the line between discipline and abuse? Well for starters, I would say if someone calls the police on you, its probably abuse. We all have our own opinion of where the line is. In my PERSONAL opinion, anything that inflicts substantial mental or physical pain for more than a few minutes is abuse. A swat on the butt may sting for a few minutes then it’s over. There are parents out there that believe spanking a child is abuse and we are all entitled to our own opinions. I can say that I don’t think anyone would call the police if a mother spanked her child quickly in the store after they were purposely being disobedient. I also believe that constantly yelling and ridiculing a child is abuse. As parents we are here to raise our children to be good, polite, happy hardworking people. Would a child come out that way if a parent was constantly yelling at and demeaning them? No, they would grow up scared, angry, and destructive.

There is no perfect mold for parenting. Everyone is going to parent how they feel necessary, whether we agree with them or not. We will all have our opinions on where to draw the line when it comes to disciplining our children. But PLEASE, when given the opportunity, be a voice for a child who needs help.  I know it’s a sticky situation whether or not to but in; because yes, it is none of your business if my kid is screaming his head off during a tantrum and I’m ignoring him. But when you see a child being abused, crying and begging someone to stop- BE THEIR VOICE. Let them know that not all people/adults act this way, let them know that someone will stand up for them. It may be uncomfortable and awkward and you may get yelled at. But are a few awkward minutes worth standing up for a child?

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Learning Tools

Every child learns differently, what works for one child may not work for another. In Eli’s case there was a lot of trial and error to find out what activities were really working for him. As I said in my last blog, Eli responds best to play-based therapy. When he is presented with “hard work” he shuts down and refuses to try. When things are made fun, he is more willing to follow directions and participate. I figured I would show some of the things that work for Eli.

Our main objective here is to get Eli to say more words. So far he’s learned about 15 or so words and he see’s how knowing these words makes life easier; therefore, he is more willing to learn and trying to say new words. This alone gives us a huge boost for progressing his vocabulary, but we need some more ideas. Aside from saying everything out loud and asking Eli to repeat it, we also use a lot of flashcards. I have tons of flash cards that I pick up from the Dollar Tree (pictured- below left). Eli’s speech therapist also uses flashcards, but hers are a little more detailed. Instead of just showing a picture on one side and the word on the other, these cards (Kaufman cards- pictured below, right), break the word down into how we should be sounding out the syllables for Eli. For example, the word “UP” start by saying “uh”, then “uh..P”, then the full word “up”). The Kaufman cards have actually worked really great for Eli so far. I highly recommend them.

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Now that Eli has started preschool we need to focus on some school readiness tasks. He picked up on numbers right away and really didn’t need much help with them at all. Now that he has those working we are now starting ABC’s. to help Eli with the alphabet we have traceable cards and a dry erase alphabet book. Eli isn’t really one for sitting and drawing/coloring. So these are kind of hard to get him to really do. Since he doesn’t really use them to write on, we use them as flashcards. Hold up the letter cards, say the sound, and have Eli repeat it. When he finally finds the interest in tracing them we will work on his writing skills. He does some drawing activities that aren’t too time consuming so he can keep his attention to it. I printed off tracing activities and put them in between clear sheets and have him use dry erase markers.

Eli has always done really great with gross motor skills (throwing balls, running, jumping, etc), but what he lacked in was fine motor skills (pinching, writing, cutting with scissors, etc.) A lot of this is worked on in occupational therapy. A pretty basic way to work on hand muscle activities is picking small items up with tweezers. An interesting activity Eli’s OT brought out one day was silly putty. She has a large amount of silly putty with small beads hiding inside; Eli pulls apart the silly putty and pulls out the beads. It holds his interest well and really works his hand muscles. She also has a big tub of dry beans that is a good sensory activity. But in the tub of beans she has a tennis ball with a face drawn on it, and where the mouth is, is also a cut straight through the tennis ball. When you squeeze the ball, the mouth opens and you can put beans inside. We also have some board games at home that help with his fine motor skills. Two that Eli really enjoys are ‘Let’s go Fishing” and “perfection” (Although perfection scares him when it pops at the end.)

At home in our free time, we also use ABC mouse. We actually started our subscription about a year ago but, up until recently, Eli was too young to really figure out how to use a computer mouse. At this point, we only use it for the game activities, specifically color games. Eli has learned his colors for a few months now but I love the games on ABC mouse. He really gets into them and a lot of them are pretty self explanatory. Again, if it’s fun, it doesn’t feel like work.

I know all kids learn differently, and though these work for Eli they may not work for all kids. But it is also good to find new activities to try. Don’t knock it until you try it!